About

What do you do when life gives you lemons? You make lemonade. You actively construct something positive out of something sour (for anyone that’s unfamiliar with the proverbial phrase). In the case of Lyme disease, however, you need to make something much stronger (preferably alcoholic). Plus, limeade tastes gross. So read my blog to find out how I’m making a Lyme margarita, and explore inspirational stories I have discovered for your own healing.

25 thoughts on “About

  1. Wow. So many things and symptoms you mentioned are also things I experienced as well. Constantly being sick was a big thing for me because of a weakened immune system. Chronic bronchitis! Yuck. And then the asthma diagnosis and chronic mono and sinus infections and the heavy weight on my chest. Not to mention the joint pain and rashes and many other little things. Since being diagnosed and several months of treatment and healing, I haven’t been sick and pain has subsided. I don’t touch my inhaler. I feel better that I know and can manager my body differently. I understand the alone part, but more so, I felt like people thought I was crazy and didn’t understand what I was feeling physically or experiencing. So many symptoms were due to Lyme. For years I saw specialist for this and that and was pumped with meds. My closest friends, family and husband joked about me being a hypochondriac, which made me feel stupid for what I was experience and made me ignore things so I wouldn’t go to the doctor. Finally, Clint pushed me to go to a different doctor because we wanted to start a family, but I was having horrible fatigue to the point that a 15 min drive would require a pitstop for a 20 min power nap.

    I liked this website because it helped me to realize what was Lyme and how to manage.

    http://www.anapsid.org/lyme/symptoms/

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    • Thanks Morgan! I’m so honored that you chose to tell your story on here. I am thrilled that you have overcome the worst of it, and that you are in the process of starting a family : ) I’m giving you a cyber high five (I’m such a dork : /)

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      • Hi Melissa. Sorry for the delay. I’ve been terrible about keeping up with my blog recently. I stopped HBOT due to increased nerve irritation. I was diagnosed with Babesia, which my doctor said can sometimes worsen with hyperbaric therapy. Are you thinking about doing it? I know people that have had great results. Recently had MRI, but no spect scan. Results show hypertrophy and hypotrophy in various areas. Thanks for writing. Sarah

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  2. You are amazing Sarah. I love how your videos are so genuine, real and positive, just like how you are as a person. I can honestly say that I was touched by them as they helped me to remember my own struggles (both past and present), and reminded me to keep on “keepin on” (if you will). I was so glad to see your face and hear your voice–both of which I miss SO MUCH and I will continue to pray and send good vibes your way, towards your recovery and remission. Miss you and please do take care of yourself. ❤ "Jac"

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    • Oh Jac. You will always be the first person I think of when I hear the word “strength.” I feel like your face should be plastered next to that word in Webster’s Dictionary. You have actually been on my mind throughout this entire process. I even said to myself a few times … Jac has been through hell and back and she rocked her treatment, so man up, Sarah. You will pretty much always be my hero. Love you and miss you. (and if you ever want to tell your story … you know who to call … because you’re beyond amazing … k bye).

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  3. Sarah- you are, without a doubt, an “angel” and “spirit guide” in my life and I am so proud of you for putting these out into the world to help others. I have never known a more empathetic, caring and selfless individual in my life.
    I watched all the videos and I’ll probably watch them all again soon because the sight of you and the sound of your voice helps me… I miss you like crazy and your blog brings a little piece of you home. I only wish I could pass you baked goods through the screen, then it would be even more like the real deal. I love you. I am holding your hand just like you always hold mine through every hard thing in life.

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    • My soul sister! Love the Katie K. Perfect : ) I miss you too. You know that you represent those same roles in my life too. You are constantly helping others as a mom, sister, daughter, friend, wife … I have watched you give beyond measure. I would gladly accept baked goods and eat them, even if it meant eating my computer screen (that’s how much I love those chocolate chips cookies). Thank you for always being my friend, even during the difficult times. It means a lot. Love you.

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  4. The universe brought me here. Wow Sarah. I feel for your whole journey. I am humbled. Thank you for sharing. Yes we always have a choice and opportunity. Even the dark pits can be gifts if we choose to see the challenge as God’s sacred path for us to grow into.

    The Lyme explanation brings all the symptoms together and you can better manage now that you know. I am so freaking proud of you times infinity. The human spirit soars in this one. I’m wishing you sacred everything. And I actually enjoyed the details of UTI. I pee a lot too. Love you

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  5. Listen Leki, the universe brought us together a LONG time ago … k?! (sassy face). You have helped me to expand my conciousness in so many ways throughout the years. You have opened my mind spiritually and fueled my growth into a more mature person. So thank you. May your human spirit continue to soar across the you-niverse (I know I didn’t write that Leki-ism right … but you get it)!

    Aaaaaaand it’s great to know how much you pee. Te quiero. Ciao.

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  6. What a wonderful website – to see someone turn a misfortune like lymes into an opportunity to serve / connect / educate others is a gift. Thank you Sarah!

    Big Dane

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  7. Hi Sarah! Thank you for sharing your story! The more of us that do it the better. I went through a cascade of symptoms that weren’t typically Lyme either. They turned out to be from my co-infections. I was diagnosed at my 6th doctor! I was so lucky she was Lyme literate.

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    • Thanks for stopping by. I’m so sorry to hear about your struggles Robin. Amazing how many doctors Lyme patients must go through before getting a diagnosis … makes me sad. Glad to hear that you found someone to help. Best of luck with your treatment.

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  8. Hi, Sarah. Thank you for sharing your story, your wisdom, your strength, your vision! You are inspiring and helping many!

    I was wondering if you have any suggestions for $ help for diagnosis and treatment? This is hitting me after a year of cancer treatment (I now question the correlation), and I haven’t worked since the end of 2013. I’m still fighting for disability and am not even able to pay my normal overhead bills. Do you know of any agencies or resources for $ supports? I know about LymeTap, and it’s great, but even that is not 100%, and frankly the copay is outside my abilities, let alone treatment costs. I’m forging forward and getting in with an LLMD soon, but really have no idea about how I will proceed with office visit costs, supplements, and my testing copayments (after LymeTap). I’d love to hear any suggestions you might have!

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    • Kelly. I’m so sorry for the expenses. I feel for you!!! I have some friends that created their own profiles to raise money for treatment that they posted to their Facebook page so that family and friends could help. This would require going public with the diagnosis however. I have an female support group that I am a part of on facebook … It’s called “Lyme disease group.” Would you mind if I posed this question to them and get back to you? Or feel free to join and ask as many questions as you like! They are wonderful and so knowledgeable. We are almost to 8000 members. Let me know either way. Wishing you healing ❤️

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  9. Hi Sarah,
    Wow, I am SO glad you created this blog and posted the videos (I watched them all, and I bet they will go viral soon:)
    I LOVE your Hope video, I’m going to watch it over and over when I’m down and I feel the SAME WAY about being cured not just in remission. F this, it’s leaving the building forever!!! I have been thru a whole bunch of similar stuff you mention and was diagnosed with Lyme about 3 years ago. I finally decided (after some denial) to move forward on the treatment my doc recommends (4 months oral antibiotics and 2 weeks IV antibiotics), in doing this my doctor wants me to go on a super duper duper clean diet (no gluten, no dairy, no soy, no sugar – boo), this alone sucks:) and then start a bunch of supplements and in 2 months start antibiotics.
    Glad I found you:)
    -Heidi:)

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    • Dear Heidi,
      Haha love it! F this! Nice. I hear you on the clean diet woes. It was super hard for me to clean my eating up. Who wants to throw away delicious chocolate? Are you with me?! That being said, after 2 weeks of pure torture, I stopped missing french fries and the likes. I cheat every now and again, but overall have seen huge improvements from the change in my eating … reduced inflammation being the biggest bonus. I’m wishing you all the healing energy I can muster. Let me know how things go for you.
      Lyme Hug,
      Sarah

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  10. Damn I was hoping you wear going to say that this diet thing is crazy and no doctor in their right mind would prescribe it, and I would then proceed to eat the 300 Oreos I dream about:):):)
    In all seriousness, thank you, I have slowly been doing the diet but cheating a lot and I keep saying I’ll really start next week, but it’s great to hear that 2 weeks after I for real start I won’t dream about ice cream sundaes and start drooling when someone mentions stuffed shells:)
    And right back at you with sending you super healing energy!!!!
    oxoxoxoxo
    -Heidi:)

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    • I swear we might be the same person … haha … especially when I read the 300 Oreos comment. Just keep chugging along. Cheating is allowed ; ) Otherwise, how else would be survive, like for real?!!!

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  11. Sarah I live in Portland TN and was wondering who your Dr is as I have been dealing with lyme for 19 years and very sick now and needing a PC.I had to go to a walkin clinic a couple weeks ago was given antibiotics but 3 days after coming off med I’m just as sick as I was.I’ve got to back to the clinic tomorrow I’m so sick I don’t fill much like sitting up and it’s to painful to lay down even on the pain meds.It would mean a lot if I could find a good Dr and one that really cares my last PC cut her hours and it’s just got to hard to get an appointment or getting one and having to set 3 hours or longer and she cares more about money than patient.

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  12. Hey Sarah,

    I came across your blog while researching HBOT. I’ve had Lyme for most of my life. It comes an goes and now I want to rid it once and for all. I was looking over your treatment and was wondering if you could tell me about your experiences with HBOT. How long was your treatment? What was your protocol? What symptoms, if any, did you find relieved after undergoing this treatment? Anything you’d suggest doing in conjunction with this?

    Thanks your help and for your awesome blog!

    Sincerely,
    Donny R

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